Will We Finally Have Answers - ASD Assessment

19 December 2017

Photo by John Noonan on Unsplash

We have finally received Gee's appointment for an ADOS assessment and whilst I am happy that we may have some answers, I don't for one minute think a diagnosis will provide us with any additional support. Gee has been masking her symptoms and behaviours for years and for her having a diagnosis will aid her to understand why she is the way she is.

I lay in bed last night reading and Gee came to me. We had the most bizarre conversation about how she shuts out the outside world by visiting her world in her head. Apparently this land is full of unicorns, rainbows and horses and it helps her to feel calm when everything is becoming too much for her, this happens quite a lot when she is being overloaded with information at school. She made me laugh because the teacher shouted at her for clicking her pen and she found it hilarious because she did not know what she had done wrong, she automatically fiddles with things to relax.

Gee is not a naughty child, she just struggles to understand the importance of rules and everything has to revolve around her timing of tasks. So whilst she is timing herself on the loo, I can be stood outside desperate to relive myself and she will not move until it is time, one of these days I'm sure I will have an accident or use the bath out of desperation.

Food is becoming a real issue. She has always been a picky eater, preferring meals that do not take much chewing. Pasta is a huge favourite and I have resorted to making my own pasta sauces with hidden vegetables liquidised in so that she still receives some nutrients daily. I worry that she thinks she is fat when in reality she is so tiny it cannot possibly be true.

One thing that really annoys me is her untidiness and oh boy is she untidy, her bedroom looks like a bomb site. When I confronted her about it, her reasoning was that she knows where everything is, that it is all well and good but I cannot walk in her bedroom for fear of treading on something and breaking it.

You may have all seen on social media the little boy Keaton who has put up with bullying for months, it pulls on my heart strings that any child should have to go through this. Gee struggles to understand other girls at school, they say she is their friend but then resort to unkind words and behaviours, deliberately trying to touch her food and drink out of her water bottle when they know how it makes her feel. Why are children so unkind and cruel?

How can she have got to 12 years old without me noticing her struggle with reality, I feel I have let her down in so many ways. All I want is for Gee to be happy and if that means living in her world with the weird and wonderful creatures then I would rather be there than anywhere else.

17 comments:

  1. This sounds so much like my girl....We are waiting for an appointment for her to be assessed. I feel like I have let my girl down by not realising and getting her help sooner. Sending hugs x

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    1. Oh Kim it is a dreadful feeling isn't it? I'm glad I'm not on my own. I hope you manage to find some answers soon. Always here if you want to natter xx

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  2. I think it can be so hard to see things clearly when they are right in front of you. Life has a funny way of doing that. Please don't be hard on yourself we are all just doing the best we can for our own situations x

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  3. such sad news to hear, we hope all works out well x

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  4. I'm glad you have an appointment through, sometimes answers are a starting point. Good luck. xx

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  5. Ah don't think you've let her down, you've got answers and that's the first step.

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  6. I am glad you have the appointment and get some reassurance and answers to help you all and support your little girl

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  7. Awww bless her but I think it is important that she has explained to you about her world where she does to stay calm and though it might interfere with day to day, it is a good escape

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    1. I agree Anosa, I need one of these worlds x

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  8. I think it is natural to retreat into our own little worlds sometimes, I know I did as a child. Hope you get the answers you are looking for

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  9. I hope you manage to get answers soon. My little girl is 4 and has been having tests for different things too, she has so far been tested for autism which she doesn't have and we are waiting for more tests when she gets a little older x

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  10. Glad Gee opened up about her own little world. This will help you understand her more.

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